Carriers seek collaboration to end sickle cell disorder
Gathering in Abuja to mark the SCD global day, the carriers called on Nigerians to joined hands and fight the yet incurable but preventable disorder.
One of the carriers and founder of Shirley Hills Foundation, Shirley Hills, said that Africa, and particularly Nigeria, suffers more from the condition.
Hills, who is also the convener of the event, stressed: “As you may know, the world, the black race and the Africa continent has suffered the more from this disorder, with the future of so many great and promising children and individuals jeopardised as result of avoidable actions.
“Being an incurable but preventable disease, it is high time we joined hands more strongly to break the sickle cell cycle. Rare diseases like SCD often don’t get the attention they deserve.
“Statistics show that 95 per cent of rare diseases don’t have a single FDA-approved drug treatment – there are only 400 treatments approved to treat some 7,000 rare diseases believed to be affecting people today.
“It’s clearly enough to say that with more awareness and education, this cause can get the much-needed attention it deserves.”
She disclosed that her foundation has launched a new initiative called RedBlood Crescents Afrique to mark the World Sickle Cell Day 2015, and that the initiative would further promote awareness and advocacy for the prevention, management and control of SCD in Africa as well as provide support and succour to carriers of the trait and sufferers through counselling, treatment, awareness outreaches and research.